Graduating from pediatric to adult health care

For Youth & Families

From Got Transition

Family Toolkit on Health Care Transition
Got Transition and its National Family Health Care Transition Advisory Group developed a toolkit for families to use during the transition from pediatric to adult health care. It includes a set of tools for youth and parents/caregivers to use to better prepare for the transition to adult care.

5 Steps to Prepare for Health Care Transition
These 5 easy steps can help youth, young adults, and their families prepare for transition to adult health care.


FloridaHATS Information Guides

From the Institute for Child Health Policy at the University of Florida:

Transition 2 Go

A series of informational briefs with transition-related tips and resources for consumers and health care providers in Florida:

Skill-Building Curricula and Videos

Readiness Checklists & Care Plans

  • TRAQ, Transition Readiness Assessment Tool. TRAQ is a validated, patient-centered questionnaire that providers and families can use to assess youths’ ability to make appointments, to understand their medications and to develop other skills needed for transition to adult care. It is designed to be self-administered and it takes less than 5 minutes for youth to fill it out. The questionnaire can also be filled out by caretakers to get their perspective on their youth’s transition skills. Use of this instrument has the potential to improve transition assessment and support and improve health outcomes during healthcare transition for youth with special health care needs. TRAQ is available in an excel file to input, score and aggregate results, or in PDF. Visit the East Tennessee State University web site to download the instrument and learn more.
  • Got Transition’ Sample Readiness Assessment for Youth/Young Adults. For all versions of the Six Core Elements assessment, including those for caregivers and Spanish speakers, visit
  • STARx Program Tools, from the University of North Carolina-Chapel Hill
  • TRAScore [© 2013 Mountain Area Health Education Center (MAHEC), Asheville, NC;  20-item
    assessment with automatic score calculation formatted in Excel]
  • Transition Timeline (from Shriner’s Hospitals and University of Washington)
  • Brief Transition Checklist (ages 12 – 18+)
  • Transition Health Care Check List: Transition to Adult Living (Pennsylvania Department of Health)
  • My Medical has created an app that can help you keep track of test results, store medical histories, and monitor your health. Check it out at and download it on your ipad, mac, iphone, or android device.
  • MyMedSchedule Plus app (free medication schedules and email/text reminders!)
  • Journey to Adulthood: A Transition Travel Guide (2012;  a comprehensive 99-page guide that includes covers all aspects of transition, including checklists, forms, and plan templates; from Shriners Hospital for Children, Lexington)
Workbooks from the Institute of Child Health Policy at University of Florida and CMS:

Medical Summary Forms

Youth Leadership

Condition-Specific Materials

Autism Spectrum Disorders

Cerebral Palsy

Cornelia de Lange Syndrome

Cystic Fibrosis



Intellectual/Developmental Disabilities  (ID/DD)

Juvenile Arthritis

Metabolic Conditions

Neuromuscular Disease

Pulmonary Disease

Spina Bifida

Sickle Cell Disease

System-Specific Materials

Children’s Medical Services

Secondary & Post-Secondary Education

Juvenile Justice

Foster Care

Mental Health

Oral Health

  • Oral Health Training for Caregivers (2014, from FDDC).  This webinar/video is for anyone who provides personal care to an individual with a developmental disability, demonstrating how to perform oral hygiene techniques such as positioning, brushing and flossing.
  • Oral Health Florida
  • Project: Dentists Care (Florida Dental Health Foundation 2010)  Dental access resource guide for underserved Floridians.
  • Florida Donated Dental Services (DDS) provides dental care to elderly, disabled and medically at-risk clients. One must be unable to pay for dental care and need extensive treatment (more than routine care).  Visit here to learn more and to apply for services.
  • Oral Health Sustainability Resource Center  (developed by Palm Beach State College)

Other Resources